Insomnia and other pesky ailments

I know you're probably tired of me talking about CFS (Chronic Fatigue Syndrome), but like I said in a previous blog, people don't get it. They don't understand it. They don't know how debilitating it can be. It causes things like insomnia. I have suffered insomnia for about three years now. Something I didn't know was connected with CFS. According to my FitBit, I never get more than four hours of restful sleep a night. Last night, I woke at 1:30 am and was up until 6 am. I did finally go back to sleep, but have no idea how this giant break in my sleep will affect my day.

Also, a follow up from last weeks blogs in which I walked to work...I've been paying for it. My entire body aches, I'm so exhausted, I've been having dizzy spells...I didn't walk to work yesterday, because I had some things I needed to bring there that would have been too burdensome to carry. This morning I needed to sleep as long as possible, so I won't be walking today either. I hope to get back to it tomorrow. I'm serious about fighting back. It may have put me out for a few days, but I'm going to get right back to it when I feel my body can handle it.

Luckily I have a job that is fun and doesn't take much physical effort. I can only handle  5 to 6 hours a day, especially when using my brain a lot. When I was trying to find a job, I was worried I wouldn't be able to find one that fit my needs. I was afraid I'd have to go on disability, which felt wrong because I'm perfectly capable of working, I just can't work a full time job. I even had to fight to get unemployment because I was only looking for part time jobs. I had to get a letter from  my doctor and have a hearing with a judge. Thankfully she understood. I'm glad to have a job in which I only work 6 hours a day,

I worry though, because come April, I'll have to work 5 days a week. I know that sounds lazy, but the struggle is real. However, I did work 5 days a week before for 5 hours a day and I did okay. I usually had to take a nap as soon as I went home. This job is different because my hours are noon to 6. There is no nap time. If I had my choice, I'd get up early and get things done, then go to work. But the reality is, working those hours, I need to sleep as late as possible to help me make it through the day.

I know it probably sounds pathetic to a normal person, but I can't reiterate how real it is. I used to be a person always on the go, always getting things done. I had endless energy and could write, clean, cook, exercise, take care of the kids, do the grocery shopping, help with homework...how I'm lucky to get one of those things in during the day. So believe me, it's frustrating. I wanted a curable diagnosis so I could get back to being my normal self. But what my doctor said is this,

"You have to come to the realization that you have Chronic Fatigue Syndrome. You need to learn how to live with it. You need to learn how to love yourself with it."

I'm still learning.

A change for heart

When Chronic Fatigue Syndrome kicked in 3 years ago, it was debilitating. I had to take long naps in the middle of the afternoon, I was forced to quit kickboxing, and exercise I loved, because it became too hard on my tired body. I didn't have the energy to do any normal activities after work like clean, cook, work in the yard...Some days I could barely get out of bed. It also made my weight steadily climb.

As of late, I have been truly disgusted with myself. Though I have started working out and I eat fairly well, I cannot lose this weight I've put on the last few years. I worry about my health because people I went to school are started to die. I long to be fit and healthy again and live a long full life.

I bought myself a Fitbit. My work is very sedentary. I work at a computer pretty much all day doing research, writing, marketing...Even when I go to the gym after work and walk on the treadmill and lift weights, I still can't seem to get my 10,000 steps in.

Today I got a wild hair up my butt and decided I needed to start walking to work. There is nothing else I could think of that would help me get those steps I needed. I figured between that, cutting out most carbs, some dairy, cheese, and drinking one glass of red wine a night for health, maybe I could drop some of my excess weight.

I looked it up on Google maps. It said it would take me 40 minutes to get there. I looked out my sliding glass door. It was windy, but not rainy. The sky was peeking through gray clouds. So I went for it. I emptied all the unnecessary things out of my backpack, added my computer and accessories, hair product, makeup and deodorant and off I went.

 I regretted my decision almost a mile in when I felt the first rain drop. Then another. Then another. I put the hood up on my sweatshirt and kept going. I thought, if it got too bad, I could call my daughter. Lucky, the rain abated as quickly as it had began.

I looked at my Fitbit about a mile in and had only achieved about 1300 steps. How could that be possible? Was walking to work even worth it? I got hot and took my sweatshirt off.

There aren't really any steep hills, but there are a few steady inclines, which I think are almost worse.
At just over a mile, my 40+ year old hips screamed at me to turn around. I ignored them. I was already half way there. I was cold again, and put my sweatshirt back on.

Someone in a truck honked. Was it you? Let me know. I really couldn't tell who it was.

When I could finally see the shop, I was home free.

When I walked through the door, I checked my Fitbit. I was just a few steps away from 5,000 half a day's goal. Got a glass of water, turned on the fan, and here I am.

My bad elbow hurts a little. Hopefully the 5+ pounds I carried on my back won't affect me too much if at all (I'm old you know). My hair didn't frizz out too much, my makeup didn't melt. It was a good experience.

I'm determined to fight my CFS. I'm tired of it keeping me from getting things done. My goal is to get my mind, body and spirit back in alignment (if it really ever were). I think walking to work will be a good start if I can make it a habit. It's a little hard right now, because the weather is still pretty crappy here. Come summer, though, I'll be good to go.

Thanks for reading my crap. 40 pounds to go, mind starting to unfog, happiness on the horizon.